Saturday, February 12, 2011

Sharing Your Excessive Sweating (Hyperhidrosis) Stories



For several years, I have solicited and published stories by people with hyperhidrosis. I have decided to stop doing so because I feel I cannot respond to the many e-mails I receive with the care they justify. I am a full-time working mom and I simply don't have much time to respond to these personal e-mails. Instead, I wish to focus what little spare time I have on original research and reporting related to hyperhidrosis. So please stay tuned.

I am often approached by other bloggers asking me to link to them. Usually, these bloggers are selling products in such a way that I question their trustworthiness. However, there is one hyperhidrosis website that I particularly admire: no-ets.com. The site has a hyperhidrosis forum that is active and useful. As such, I encourage people to share their stories on this forum rather than e-mailing them to me. That way, you will increase your chances of receiving the support you are seeking.

I like that the website's author recommends other treatments before highly risky ETS surgery. He had ETS surgery with mixed results (he ranks his satisfaction as a 7 out of 10), and suffers from compensatory sweating, as do many other ETS patients. He is still seeking help for his excessive foot sweating, as am I.

I did not vet every single post on his website, but the ones I saw seem impartial and based on research.

Please keep following my blog, as I will continue to post.


Underarm Sweating: Is a Cure in the Works?


A medical device company recently won government approval for a device it claims stops excessive underarm sweating, according to the Wall Street Journal.

The company, Miramar Labs, Inc., seeks funding to help bring this product to the market. However, it is unclear when this might happen.

Miramar CEO told the Wall Street Journal's Dow Jones Financial Information Service that the device sailed through a recent randomized, blinded sham-control study with 120 patients, which was followed by a 510(k) approval by the Food and Drug Administration.

For more information, see the Financial Information Service article, "No Sweat For Miramar Labs; Gets Device Approval, Seeks Funding" and the Miramar Labs website.



Friday, December 10, 2010

Public Speaking Next Week!


Next week, I must make a presentation in front of approximately 25 people. Just thinking about it makes my hands sweat. I've got to ramp up the yoga again. Practice the presentation so I am ready and expecting to succeed. Hopefully I won't sweat enough to manufacture bottles of "Pocari Sweat." (-:

Photo courtesy of WordRidden, Creative Commons. http://www.flickr.com/photos/wordridden/205941900/

Saturday, September 18, 2010

Medications for Hyperhidrosis: What's the Latest?


New from sweathelp.org:

Medications for Hyperhidrosis: What's the Latest?
Oral medications can be used by certain hyperhidrosis patients to successfully control their excessive sweating. But it’s not a one-size-fits-all therapy; only specific kinds of hyperhidrosis respond well to oral treatments. In this article, we discuss the in’s and out’s of anticholenergics and other oral medications used for treating certain types of hyperhidrosis. Could systemic medication be the right for managing your type of excessive sweating?

Botox for Sweaty Palms: Fail. Drinking Alcohol to Ease Hyperhidrosis Anxiety: Danger.


A sad story from a reader who tried Botox for palmar hyperhidrosis and found his sweating was worse than ever. I am quite surprised to hear about the bad results because I had heard that others had good results from Botox injections. The main complaint I have heard about Botox is that the treatment is too expensive. However, I have heard that axillary (armpit) injections are more effective than those on the hands and feet. In any case, I am not a medical expert, so please talk to your healthcare professional.

The reader's letter brings to light the all-too-common and dangerous self-treatment technique: alcohol and other drugs. I used to drink excessively in my late teens and early 20s to relieve the anxiety caused by my hyperhidrosis. Thankfully I was able to stop, but for others who have a genetic predisposition to addiction, stopping is much more difficult. In any case, self-medicating with alcohol and other drugs is NOT a good idea and is not a sustainable strategy.

His letter also underscores the problem with our healthcare system. Botox is much more profitable for physicians than treatments such as iontophoresis, which is a recommended treatment for palmar hyperhidrois, but it is so hard to find a doctor who will prescribe that treatment. The upfront investment likely costs less than a Botox treatment.

Any suggestions for this young man? Clearly, he is intelligent and has much to offer others. I would suggest going to sweathelp.org, reading up about the other treatments besides Botox and surgery, then talking to a primary care physician or dermatologist.

Love,
Tiara

--------------------------------------------------------------


Hi Tiara,
This is my story and you may share it:
I have been living with hyperhidrosis for over ten years now. I noticed the "problem" when I was 13 years old. I was in eighth grade, sitting in math class one day, when I looked down at myself and noticed that the armpits of my T-shirt were completely soaked. Beyond embarrassing, it was so confusing to me since the classroom was comfortably cool. I began to realize that there was something wrong with me when the sweating persisted day after day, usually during a class session. I guess over the next couple of weeks or months, the sweating spread to my hands as well as my feet, making it extremely difficult to focus and take notes in my classes. Despite the fact that both my father and grandfather are surgeons, my fear of humiliation got the best of me and I never talked about my problem to anyone. At the time, I figured that I was the only person on Earth with such a condition, and that nobody would be able to treat me. I felt like such a freak, even though I had great people skills, good looks and health, and thought of myself otherwise as a pretty normal kid.
As bad as the problem was, I taught myself to just deal with it. I would only wear certain clothing, I would constantly stuff my armpits with papertowel underneath whatever I was wearing, I would keep some type of super-absorbent material in my backpack and when the sweating got really bad, I would covertly reach down into the bag and wipe my palms with whatever it was. I was pretty good at concealing the problem from everyone, despite its magnitude.
My sweating continued from that point on, with highs of profuse sweating and lows of slight dampness depending on the timeframe. It wasn't until halfway through my senior year of high school that the sweating got really out of control, particularly in my hands (or at least I focused on my hands since they could not be hidden as well as other parts of my body). I briefly saw a psychologist, but terminated therapy because my sweating seemed to increase just talking about it.
Somehow I managed to do well academically in all the schools I attended, until my junior year of college. It was then that the sweating got so bad that I just stopped showing up to my classes unless absolutely necessary. My GPA dropped dramatically and I almost did not graduate on time. In addition to taking its toll my studies, the problem affected my relationships with important people in my life. Having usually been outgoing and popular among my peers, I became reclusive and anti-social, I became estranged from most of my family members, lost several good friends, and I began to think I was destined to live a very lonely life. I dated casually, but was never able to maintain a serious relationship since I would not allow myself to get too close to others. Behind closed doors, I drank heavily and tried a multitude of recreational drugs. I felt as if I was living such a duplicitous life, which in retrospect, probably explains my interest in spy-themed movies and novels.
I got a job at a non-profit organization immediately after college (two days after graduation) to avoid having to move back home with my parents. In the last twelve months, my job has required me to do more "spotlight" work, such as giving presentations to large crowds. Being at the center of attention triggered my sweating to what felt like a dangerously high level. The first time I seriously considered suicide was the week I found out that I would be speaking at a national conference. I don’t exactly know how I made it through that speech since I drank so much beforehand to calm my nerves. Miraculously, it went very well from what I was told, but the memory is still a blur since I was secretly drunk for that 30 minutes in front of the podium.
I finally sought help the following week when I returned home from the conference. After all the research I had done, it seemed that Botox injections had a very high success rate for curing palmar hyperhidrosis. Since my health insurance covered only so little, I would have to pay mostly out of pocket. I managed to save up enough money to cover the deductible (just under $1500) to get it done at the office of a reputable plastic surgeon that specialized in hyperhidrosis. Starving myself for two weeks and paying my rent over a month late was, in my opinion, a small price for what seemed too good to be true: dry hands. After a painful 50 injections in each hand (100 shots total), I left that doctor’s office feeling as if my life was about to change for the better. Unfortunately, that s*** did absolutely nothing.
Ever since that conference this past May, my sweating is the worst it has ever been. My hands are wet even as I write this email. The sweating has also spread to other areas of my body such as my chest, stomach, and thighs. No matter where I go or what I do, whether I am riding the subway or lying in bed watching a movie, I cannot tried hypnosis. Nothing works to alleviate the problem. I’m sure most people would not know it by looking at me, but this is the most depressed and hopeless I have ever felt.
A 24 year-old man, I have always considered myself an independent and resilient individual with so much life to live. But if this sweating disorder is a problem I must live with forever, let’s just say I am not looking forward to the rest of my life.

Monday, September 13, 2010

Acupressure for anxiety

For those with mild to moderate hyperhidrosis, acupressure might help. Basically, you apply pressure to various points of your body. Some believe that acupressure can relieve anxiety. Sure, massage is better. But acupressure is free.

Try these acupressure techniques and let me know if it helped. They helped me! Then again so does chasing soccer balls, petting puppies, and watching Will Ferrell movies.

Love,
Tiara






Saturday, April 24, 2010

Hyperhidrosis and Me.com

I'm just starting to review this website -- definitely worth checking out -- http://www.hyperhidrosisandme.com/.

More later...just wanted to pass on the link.

Thursday, April 22, 2010

Beware, Hyperhidrosis Shysters!

Watch out for scam artists trying to take
advantage of people with hyperhidrosis!
Image courtesy of Ninja M.,
 http://www.flickr.com/photos/a_ninjamonkey/
There is nothing wrong with being shy. Shy people are among the smartest, most clever people I know. A 'shyster', however, is a different creature. A shyster is a disreputable person who is trying to sell something under false pretenses. There are shysters who try to post comments to this blog only to generate sales for their shady products, or to promote ETS surgery as a first resort. I know who you are. You can't fool me, and I am not going to post your comments. I'm not even going to identify who you are because then you'll just get more links. I am sick and tired of people trying to scam people with hyperhidrosis out of their money. I make enough money on my own, and I don't need to make money from this blog. The reason I am writing it is because it is part of my own healing process. My teenage years were hell because of my sweaty palms and feet, and by sharing my experience and connecting others with resources, I hope I am being helpful to teens who are in my same wet shoes.

A reader earlier commented negatively about the International Hyperhidrosis Society, alleging that the organization has been putting out false information. I have no personal connection with this organization, and no reason to profit from their success. I do think that they offer valuable resources and that teenagers should visit the Teen Sweat 101 website. Surgery is recommended only after all other treatments have failed. To be fair, I do think the International Hyperhidrosis Society needs to push doctors and medical insurance companies to make iontophoresis more widely available. (Many doctors offer only Botox treatment because it is more profitable.)

I really don't have much time to blog these days, and I'm sorry for the delay in responding to non-shysters who have reached out to me.




Monday, September 21, 2009

Drionic Success Story

A story from a West Coast reader...she had good luck with Drionic. I, on the other hand, found that it didn't work for me! So buyer beware!

***
So I'm 18 years old and I live in Seattle, Washington. I've been living with hyperhidrosis of the hands and feet for my entire life and it has been horrible. Two years ago, I started using Drysol and those other aluminum chloride things. They barely worked.

About six months ago, I went to a dermatologist with my mom and she gave me a brochure for Drionic. It has completely changed my life.

While I don't have HH in my armpits, there is a Drionic device for your armpits too.

I ordered my device online from drionic.com. It was about $140...more with tax and shipping, but it was well worth it!

I only use it for my hands, because they need it most and batteries are $7 a pair. This will change your life, I promise you. I first used it for a total of 7 hours (in half hour treatments) and i was dry for 5 weeks! I started doing it once weekly after another set of treatments to stay dry. So a pair of batteries usually lasts about two months or so.
I hope I have helped!!!

Monday, August 31, 2009

Drionic: Does it work or not?

I used Drionic when I was a teenager, and it hurt like hell! Perhaps I didn't use it correctly, because one reader wrote to say she used it with success. (Hopefully she is not a Drionic marketing representative!) Anyway, here's what the reader said:

So I'm 18 years old and i live in Seattle, Washington.
I've been living with hyperhidrosis of the hands and feet for my entire life and it has been horrible. two years ago i started using drysol and those other aluminum chloride things and they barely worked.

About six months ago, i went to a dermatologist with my mom and she gave me a brochure for Drionic. It has completely changed my life.

While I don't have HH in my armpits, there is a Drionic device for your armpits too.

I ordered my device online from drionic.com. It was about $140...more with tax and shipping, but it was well worth it!

i only use it for my hands, because they need it most and batteries are $7 a pair. This will change your life, I promise you. I first used it for a total of 7 hours (in half hour treatments) and i was dry for 5 weeks! I started doing it once weekly after another set of treatments to stay dry. So a pair of batteries usually lasts about two months or so.
I hope I have helped!!!