For several years, I have solicited and published stories by people with hyperhidrosis. I have decided to stop doing so because I feel I cannot respond to the many e-mails I receive with the care they justify. I am a full-time working mom and I simply don't have much time to respond to these personal e-mails. Instead, I wish to focus what little spare time I have on original research and reporting related to hyperhidrosis. So please stay tuned.
I am often approached by other bloggers asking me to link to them. Usually, these bloggers are selling products in such a way that I question their trustworthiness. However, there is one hyperhidrosis website that I particularly admire: no-ets.com. The site has a hyperhidrosis forum that is active and useful. As such, I encourage people to share their stories on this forum rather than e-mailing them to me. That way, you will increase your chances of receiving the support you are seeking.
I like that the website's author recommends other treatments before highly risky ETS surgery. He had ETS surgery with mixed results (he ranks his satisfaction as a 7 out of 10), and suffers from compensatory sweating, as do many other ETS patients. He is still seeking help for his excessive foot sweating, as am I.
I did not vet every single post on his website, but the ones I saw seem impartial and based on research.
Please keep following my blog, as I will continue to post.
2 comments:
Its great that there are lots of people interested in sharing their stories to the benefit of other patients.
The welsh school of pharmacy, Cardiff Uni is developing a patient centred instrument (measure) for assessing the quality of life of hyperhidrosis patients.
This requires obtaining the experiences of individuals suffering from hyperhidrosis.
An online focus group discussion will be conducted to discuss the impact of hyperhidrosis on everyday life of patients.
If you are interested in sharing your experiences please contact Paul Kamudoni using the following address KamudoniP@cardiff.ac.uk
I applaud what you are doing with your blog. Hyperhidrosis suffers from a lack of awareness and understanding. I am a pharmacist with a lot of experience with this condition. In fact I started a website. It is a commercial site but it also has a lot of very good info. I also have a Ask The Dry Pharmacist service where I take questions from anyone with this condition. I do a lot of consulting via this service. PS Regarding the Cardiff U study on QOL - I have asked if I can promote the study on my site.
The Dry Pharmacist
Post a Comment