Hyperhidrosis research: An online focus group discussion

Thanks to Paul Kamudoni for letting me know about work being done at the Welsh school of pharmacy, Cardiff University,  to develop a patient-centred instrument (measure) for assessing the quality of life of hyperhidrosis patients. He commented on an earlier post, and I have copied his note to make sure it gets some notice:

An online focus group discussion will be conducted to discuss the impact of hyperhidrosis on everyday life of patients. 

If you are interested in sharing your experiences please contact Paul Kamudoni using the following address KamudoniP@cardiff.ac.uk

Thanks again, Paul. I would like to participate if it is not too late. For those of you on the fence, this type of research is important in convincing insurance companies to cover hyperhidrosis treatments. In addition, this kind of assessment is needed so that health professionals can take the problem more seriously. Because wiping your wet palms on your pants is NOT treatment. Hyperhidrosis affects the quality of our lives.


Tiara

Iontophoresis: Delayed Treatment

As I posted two months ago, I now have a prescription for iontophoresis. Out of pocket, this unit will cost about $600-800 USD, and given all we pay for health insurance, I of course am trying to get my health insurance company to pay for it. The details are too boring and repetitive to share, but in short, I'm getting bounced between the insurance company (who tells me I have the wrong code for the device), the device manufacturer (who says I have the right code), my doctor (who says I should go through a medical device company in order to get covered), and medical device companies, whose representatives claim they have not heard of the iontophoresis unit and won't call me back as promised. Life is so hectic right now and I simply don't have the time during business hours to spend hours on the phone with all of these entities. I am going to take a vacation day just to get around to it. Or show up in person at the medical device supplier myself.

I hope I can work this out soon as I would really like to wear sandals this summer!

Sigh...

Love,
Tiara