Yea! More people are blogging about hyperhidrosis:

• A young woman in the UK blogs about having ETS surgery: http://hyperhydrosisinfo.blogspot.com/
• The hyperhidrosis blog -- A fairly new blog written by someone who has HH: http://hyperhidrosis.wordpress.com/tag/hyperhidrosis-remedies/

Check them out and let us know what you think! And let me know what you would find most useful in my blog.

Love,
Tiara

Sweaty-palmed knitter

An interesting blog post: Sweating and swatching

Alt-med treatments for hyperhidrosis

Google has created some interesting search tools around medical topics. For example, if you search hyperhidrosis, you can get a sub-set of results related to alternative medicine treatments for hyperhidrosis.

I haven't had a chance to read all the results, and a few look suspect to me, but here are a few interesting links -- let me know what you think!

• acupuncture for hyperidrosis
• Sweathelp.org -- " We often hear about people using alternative therapies to treat hyperhidrosis. These therapies may include herbal substances such as sage tea or sage tablets, chamomile, valerian root, and St. John’s Wort. Acupuncture, biofeedback, hypnosis, and relaxation techniques have also been suggested as potential treatments. Currently there is little research to recommend such alternative therapies but this doesn’t discount their potential."
• MSN's Hyperhidrosis community
  

Winner of the second Golden Tiara Award: Samantha

I received an e-mail from a 20-year-old woman named Samantha, who generously shared her story and is interested in learning about treatment options for her hyperhidrosis. In the meantime, she is determined not to let her sweat stop her from living the life she wants. As she said, "We may not have control over our sweat, but we can control what we do about it."

Longtime readers of this blog might recall the first Golden Tiara award winner, Gretchen, a former Microsoft recruiter who offered job interview advice for people with hyperhidrosis. Look in the archives, July 2006, for the post.

Without further ado, here is Samantha's story:

~~~~~~~~~
I'm so glad to have found your blog. I know that there are other
people out there with HH, but I never personally knew anyone or came in contact
with the same problem I have. So, thank you for putting up this blog. It's
just comforting to know that someone does understand.

I'm a 20 year-old female. I've had HH ever since I was about 13 or so. Since then, I've always done the tricks that other people with this condition do: wear black or a sweater. I hate how limited my fashion is!

I sweat most of the day, but it's usually in cases where I'm surrounded by a lot of people, due to nervousness (like a job interview, being in front of the class), being the 'center of attention', being excited about something, or knowing that I'm going to have to shake someone's hand. I attend a Catholic church and at one point in during the mass we have to shake other people's hands and say "Peace be with you." I dread that part because I know the other people feel my sweaty and cold hands. Many times I've heard someone say "oh! You have cold hands!" or I would see them wipe their hand on their pants. It can get so embarrassing.

When it comes to treatment, I've used Drysol on my underarms, but I've read how dangerous Aluminum can be to the body. The other treatments involve a lot of money and I don't want to go through that. What treatments have you done/currently doing?

I guess for me, I'm going to have to deal with my anxiety, which may be the root of my HH. Anyway, as long as I have this HH, I'm not going to let it stop me from doing the things I want to do. For example, going to church. I was tempted to skip church on Sundays so I wouldn't have to shake anyone's hands, but when I thought about it, why should I let something such as
that get in the way of my life?

We may not have control over our sweat, but we can control what we do about it. I've put myself in many situations in which I would get nervous and start sweating profusely. Yes, it was uncomfortable at the time, but it was something I wanted to do (like attending a meeting!). I live in California and plan on studying in Spain this summer for a month. I'm sure it'll be hot and humid by the time I get there, which means a lot of sweat, but I won't let this sweating get in the way.

~~~~~

Tiara here:

Thank you, Samantha, for sharing your story. To answer your question, I found that drysol works for underarm sweat, but I too am concerned about the aluminum. I have yet to find a good option for hands and feet, but am trying to find a doctor who will give me iontophoresis treatment. Thanks again for sharing your story, and keep us posted!

Best wishes,
Tiara

Calling all iontophoresis practitioners!

I called four doctors who were listed on the International Hyperhidrosis Society's physician finder to see if any offered iontophoresis treatment. After all the research I've done, I am beginning to think that this is the most promising treatment for me. Each of the doctors I called had attended an educational event offered by the IHS, so I figured that they'd be able to help me.

Here's how the typical call went:
"Hello. I'm calling to see if Dr. X offers iontophoresis treatments for hyperhidrosis."
"Are you a patient?"
"I might be if s/he offers iontophoresis. Would you tell me if it is available?"

~Pause~

Doctor's office: "Uhh...what are you calling about? Do you want Botox shots?" In other words, the doctor would prefer to perform the more profitable procedure. To prevent the recurrance of sweat, Botox requires new injections every few months. Cha-ching!

On the other hand, iontophoresis requires a $600 investment in a unit and some initial training at the doctor's office. Once you are trained, you can continue treatments at home.

Does anyone know of doctors who perform iontophoresis treatments? If so, share their names with me and I'll compile a list for this blog.

One more thought: Why does it have to be so hard to find a decent treatment option?

To all the people who have e-mailed me in the past few months

Hi, I checked my e-mail for the first time in a while and noticed notes from a few people who kindly shared their stories. I'm so sorry for not getting back to you sooner...I have way too much going on in my life now, and am dealing with the beginnings of a repetitive stress injury because of too much time at the computer. I'll get back to you as soon as I can. In the meantime, if you are looking for advice on how to treat your hyperhidrosis, please visit www.sweathelp.org. I'm not a doctor, so it's best to visit this site or talk to yours.

I would like to include your stories in your blog, but I won't do so unless I have your permission. If you don't want me to publish your name and/or e-mail, I won't. The most important thing is that we talk about our HH.

Hyperhidrosis in the news

The world can be cruel to the very sweaty -- an interview with Dr. Dee Anna Glaser in the St. Louis News. The interviewer did a good job of asking about what it feels like to have hyperhidrosis -- the more people who can understand this, the better. However, the story was so short that there was very little practical information on treatment options for people with HH.

Calling for iontophoresis experiences!

I'm thinking about getting set up for iontophoresis, and would love to hear from others who have used that treatment. Does your skin get dry and prickly? Does it work well? I got to try it once at a medical conference and it seems very doable and effective. Please share your experiences so we can learn more about this highly-recommended treatment option. In the long-term, it's much more affordable than Botox.

My goal: Wear sandals comfortably this summer!

A second look at the Wet Hands Club

Back in October, I criticized a new Malaysian website, the Wet Hands Club, for pushing ETS surgery and not talking enough about nonsurgical options. Someone commented on my post, saying that was unfair. I looked at the Wet Hands website tonight, and I agree--I was a little too harsh in my post last October and the site has really expanded since then. Now I would recommend it as well-worth your while...valuable information that is well-presented. Plus the site does a great job connecting people with HH.

Can I shake your hand, Wet Hands Club?

Are you thinking of having ETS surgery?

I sometimes receive questions from people who ask me: Should I get ETS surgery?

I'm not the one to answer that because I'm not a doctor. But I can tell you what I've learned from my research and from talking to doctors: ETS is a last resort, and the failure rate is higher than what doctors who perform the surgery like to admit.

If you're thinking of getting the surgery, be sure that you've already exhausted all non-surgical options. Talk to a dermatologist who knows about hyperhidrosis but does not perform ETS surgery. Look on www.sweathelp.org for doctors. You want an unbiased opinion.

I would investigate the following with your doctor, or combinations of the following, in this order:

1) Drysol (a very strong prescription topical antiperspirant)

~and if that doesn't work or is not appropriate for you, ask about~

2) iontophoresis
~and if that doesn't work or is not appropriate for you, ask about~

3) Botox injections
~and if that doesn't work or is not appropriate for you, or if you can't afford it, ask about~

4) what other prescription options are there?

Then, as a last resort, if your sweat is unbearable and getting in the way of your life, then you might consider surgery. But be sure to talk to an unbiased dermatologist or primary care physician who has no financial interest in your getting surgery. Don't start by talking to the surgeon who is going to profit from your operation.

Remember, some people who have the ETS surgery wind up getting compensatory sweating all over their bodies, which they say is much worse. According to the International Hyperhidrosis Society:

"In a study involving 121 patients at the Medical City Hospital of Dallas, Texas, compensatory sweating occurred in more than 80% of the patients undergoing ETS. Similarly, in a Danish study conducted at the Aarhus University Hospital, 90% of the patients undergoing ETS for underarm sweating, reported compensatory sweating, half of whom were forced to change their clothes during the day because of it. "

Please, please...be careful, everyone!